Trisomy 18 & Trisomy 13

The Trisomy 18 Foundation helps to improve the lives of the children and families impacted by Trisomy 18 by providing support and connecting families, advocating for compassionate, supportive care, and advancing research into the future of Trisomy 18.

SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders. Support can be provided during prenatal diagnosis, the child’s life and after the child’s passing. SOFT is committed to respect a family’s personal decision and to the notion of parent-professional relationships.

The E.WE Foundation offers programs that address key areas of need and offers a comprehensive framework of care for families and professionals affected by rare and complex conditions. Grounded in lived experience and informed by evidence-based practices, our programs empower individuals and organizations to make meaningful, lasting impact in the rare disease ecosystem—one family, one leader, and one conversation at a time.

Many are told there are no options. Many are not connected to other parents. Many struggle to access updated medical information. 

ESA exists so no family has to navigate this diagnosis alone.

Hope for Trisomy 13 and 18 is a nonprofit, tax-exempt 501(c)(3) created in honor and memory of all living and nonliving children with Trisomy 13 and 18 and Related Conditions. The organization is now doing business as simply HOPE FOR TRISOMY to better represent its broader scope. The Board of Directors is made up of families with living and nonliving children with these conditions.

We want to meet grieving families with the hope of the gospel and celebrate every life, not due to length or achievements, but because each one of us has been created in the image of God.